Bereaved family members or someone who knew the person well can be involved in the review if they want to. This is important and helpful to the review process to learn as much as possible about the person.
Families are often well placed to contribute rich information about high quality care and areas for improvement that can significantly enhance the learning to improve services for other people.
As a minimum, families should be informed that the review is taking place, invited to contribute information about the person that has died and offered the opportunity to receive a copy of the completed review. Family members should be given an opportunity to comment on a draft review/pen portrait if they would like to do so.
All bereaved families are different and should be consulted to determine how much involvement they would like in the LeDeR review, this may include contributing to determining actions coming out of the review.
All communication with families should be timely, sensitive and authentic, ensuring that families understand the purpose and limits of LeDeR reviews and know how to raise any additional questions or concerns they may have, including any that should be addressed outside of the LeDeR process.
